Sunday, October 13, 2013

Psychosocial Stress, Competition and Happiness, Living With A Dissected Aorta

Imagine having everything you want.  In today's competitive world, the goal of having all one ever could desire is the dream of most people.
Finding more time for family and friends is important
From an early age we are programmed to accumulate things.  Our animal-like humanity teaches us about the importance of surplus.  Like the squirrels gathering up a supply for the winter, we spend much of our life stashing away for the coming future when we may or may not be able to accumulate any more.

Moreover, by turning on any television, smart phone, computer or radio we become immediately bombarded with advertisements telling us why a certain product or service is needed, important to have or necessary in our too hectic lives.  And the concept of continued accumulation is a fundamental premise our world's economy is based upon.

Keeping up with our neighbors and friends, brothers and sisters and the 'Joneses' is expected. A spirit of competition has become the norm now required in today's society.  This striving and desire to lay by in store can truly be good for many reasons.

Inventions that seemingly make our lives so much easier, like smart phones, airplanes, computers, air conditioning and processed foods are all products of the competitive marketplace.

Working hard and saving up for later is, in my opinion, the best economic outlook to have.  In many ways, this type of 'go-getter' attitude inspired me to develop and grow during my youth and young adult years and even continues to fuel my desire to write and learn more and more today.

But competition and accumulation's spell has a detrimental side too.   From a biological perspective, competition is energized in part by increased resting levels of plasma adrenaline.  Many studies have shown that over time chronic increases in adrenaline may likely cause hypertension and cellular oxidation damage.

I think of too much competition and an accumulation mode of thinking as correctly being described with the term 'psychosocial stress'.  A little psychosocial stress can encourage us to reach higher and do better.  Too much psychosocial stress can be self-defeating if we hurt our bodies from hypertension, chronic cardiac inflammatory diseases or even cancer promoted by excess adrenaline.

As with most things, finding a good balance between accumulation and satisfaction is crucial.  But with all the pressure we are under to buy and have, the odds today are stacked against ever really finding satisfaction, and instead we remain a slave to psychosocial stress.

So how much is enough?  How do we capitalize on our adrenaline in a healthy manner to lay by in store for lean or later times?  Identifying how much accumulation is enough is a good first step.  Today many people never stop trying to get more and more.  They cannot free themselves from the competitive stress of trying to have the most.  The cycle of 'finding', 'buying' and 'storing' ends only when the great after-the-funeral garage sale event is scheduled and published on Craigslist.

For me hypertension could now be a quick path to a way too early death.  I suspect there are a few others in a similar situation out across the world.  I want to share my solution to the 'how much is enough' question.

The first step in breaking the competition and accumulation cycle for me was to write out a list of every material thing I wanted to have before I died.  Being disabled I am at somewhat of an advantage over most because I know I do not have the energy to take care of too much.

My list ended up being pretty short.  I desire simplification and freedom.  The fewer things I own, the less time I spend fixing, maintaining, repairing or mending.  This means I now have more time to do the things I love, within the limits of my serious disability.

There are no correct limits of how much or how little one needs to have to break the hypertensive adrenaline cycle attributed to endless accumulation.  The key is establishing an 'endpoint'.  My list of things I wanted actually completed, finished my cycle of keeping up with the 'Joneses'.

With my list I now knew exactly what I wanted.  Surprisingly I found that I already had all I ever wanted.

Interestingly, the Bible speaks of Jesus telling a rich, young ruler "if you want to be complete, go and sell what you own and give to the poor".  For me Jesus' words here are not a challenge but a path to freedom, a path out of the accumulation cycle, a way of clarity and happiness.

My 'everything I ever wanted' list contains about one hundred items.  You can view the entire inventory here on my blog under the 'Project 100' tab.

For me my list means freedom from bondage to a bunch of things that would probably be eventually garage or estate sale sold, or passed down to someone else to store.

While others dust their things or pay the storage unit rent of future garage sale items, I am free to have coffee and an interesting conversation, help another or simply sit and focus on spirituality and each treasured heartbeat or breath.  Instead of spending time accumulating I can now walk on the beach or write haiku, spend time with my family or take wildflower photos.

Today, I am free.  I am no longer consumed with the competition and accumulation mindset when I lay resting at night.  Now thoughts of haiku and the beach and nature's beauty flood my thoughts.  Instead of psychosocial stress creating adrenaline charged oxidative stress throughout my body, a peace that surpasses all of my previous understand fills my chest.

Is this path right for you?  It probably depends on whether or not you've encountered that life changing health event.  With the onslaught of commercials we are exposed to every waking moment, the psychosocial pressure to buy more and more is stressfully strong.

In the meantime I am going to finish out my life in a state of blissful satisfaction, knowing I now have most everything I ever wanted, all listed in my Project 100 tab here on my blog that is accumulating all my many thoughts (some quite psychosocially stressful) and ideas and photographs and whatever.






Monday, October 7, 2013

Diet Implications of a Life on Metoprolol, Losartan and other Medications

I feel so much better when I am not carrying around a whole lot of excess body weight and when I am also involved in daily physical therapy.  My heart beats happier too when I do these things.
View from my bedroom window
Our bedroom window opens up to a magnificent view of the Florida flatwoods, complete with tall pines supported by an understory of thick saw palmetto, and this is where on the floor I sit when stretching.

Morning routine consists of about two hours of me attempting various aerobic stretching exercises and lifting two pound weights on a limited basis (wow!) all the while monitoring my blood pressure at varying intervals.  Last thing I want to do is a Valsalva maneuver or attempt anaerobic type lifting.  Keeping blood pressure down below the bursting pressure of my aorta is important here, and I really mean 'important'!

Rest comes next followed by mid-day pool therapy where I walk in the water, tread water and do the breast stroke for a moderate work out.  Lunch follows as does more rest.

Walking or bike riding is my afternoon physical therapy.

By seven or eight in the evening I am exhausted.  Problem is I usually can't sleep, for a number of reasons including my loud clicking heart valve and the complex combination of medications I take.

You'd think that with all the physical therapy I am involved in I'd keep my weight down to a lower BMI than the  twenty-two to twenty-three I hover around.  Yes, I know this is in the normal range but ideally I'd like to keep my BMI around twenty.  My heart and joints feel much better around the twenty number.

And you'd think with my diet keeping excess weight off would not be difficult.  I know that in my pre-dissection life, if I'd eaten then like I eat now, the weight would fly off.

But my severly dissected aorta, stretching from the present Dacron graft that has replaced the ascending aortic arch, down through my thoracic and abdominal areas into my kidneys and legs, complicates the situation.

So the doctors want my heart to beat as slow as possible.  And the doctors want my blood pressure to stay quite low too.  I call this one-two punch, 'Zombie therapy'.

And the knock out facet of this one-two punch are the medications that keep my heart beating sooooo slow and at a reduced pressure.  In and of themselves at normal concentrations they are widely used and not too terrible I hear.  However all thrown together and taken multiple times a day they have turned my once hot metabolism into a cold, practically frozen in time metabolic rate.

I told my daughter yesterday that I can actually get all the calories I need during a day just from breathing.  I was kidding of course, but even on the 1,000 calorie per day meal combinations I been treating myself too my weight maintains itself on an even keel.

Heaven forbid if I eat a dessert or treat.  I have done this occasionally and, OMG the next day I've gained three or four pounds that stay on.

If not careful I could gain fifty pounds over the span of two months.  I bet I could easily gain one hundred pounds in a year on a fifteen hundred calorie per day diet.

Food is one of the things I enjoy most in life, especially good food!  But now I have to eat lots of good-for-you-food instead of good food if I want to keep my weight steady, meaning lots of raw fruits and vegetables, staying away from sugar and moderate caloric intake and other boring 'control my eating' activities.

All this is frustrating, extremely irritating.  There are some days I am ravenous!  I am hungry, hungry and hungrier ever! Pavlov's Dog won't shut up!

I suppose that is why all of those zombies on the television programs now-a-days are constantly walking around looking for something to eat.

I am sure I am not alone.  So for all of you out there on massive amounts of Metoprolol and Losartan and other -olol's or -artans, I know what you are going through.

Check out the diet tab on the blog's homepage if you are interested in my rather dull diet.  And enjoy a cuke dipped in vinegar too!

Thursday, October 3, 2013

Aortic Dissection Surgery and Short Term Memory Loss

I have been meaning to write several posts about connective tissue issues but every time I sit down with my IPad I seem to have forgotten just what I was going to write about.

Aorta dissection surgery contributed to my short term memory loss

Well, I am going to try and get through this post without forgetting what I actually wanted to tell you.

This is really frustrating, a cry for help from me, mostly to myself.  It is important for me to find ways to cope with not being able to remember things.  For one thing, the dread of 'am I coming down with Alzheimer's Disease' lurks in the not so distant background each time I have an episode of 'I can't remember'.  That means I worry about Alzheimer's Disease many times a day and worry is not something I am supposed to be doing.  Worry causes stress which in turn contributes to hypertension which in turn is not good at all for my seriously weakened and dissected cardiovascular system or the pseudoaneurysm on my coronary artery.

Mostly I deal with my insecurities about the fragility of my heart, arteries, memory, stuttering and connective tissue problems with a blend of persistent but low impact physical therapy and humor.  Certainly it is more palatable for me to joke about my short comings than to deal with ugly defensiveness on my part.  But today I  thought a frank discussion and sharing of experiences coping with forgetfulness would be the best route for me to take.

Sharing with others about one's shortcomings opens up vulnerabilities but in a safe atmosphere can become a healing modality too.  So I am sharing with you today some of the things I can remember enough of about my forgetfulness issues to record here before they disappear into wherever lost memories go.

Ever since I had unexpectedly been subject to two open heart surgeries, one where my heart was on bypass for quite some time, my ascending aorta replaced and a mechanical heart valve installed, I have struggled with short term memory recall.

As a blogger I used to have excellent recall of words.  My mind was part of a walking thesaurus; me. Not anymore though.  Now I keep a tab open to the thesaurus wepage on the computer when writing.

So several times over the past few weeks I've had some seemingly great ideas for a cardiovascular or connective tissue or Marfan post only to arrive at the IMac empty minded.  Sheeez.  That was so frustrating.  I have much to say and share but I just cannot remember what it is I want to say much of the time.

The other day I was leaving a business and headed to the pharmacy to pick up a refill on some my medications.  Exiting the drive I could not figure out which way to turn.  Do I turn to the right? Maybe I turn to the left?  Arrrrgh!  This is happening more and more frequently to me.

Then this week on the way to drop my teen daughter off for her college class where she was having an exam, I became wrought with irritation when I could not get out my answer to her question about the topic she was being tested on.

I wanted to share three very important study points with her.  I had them laid out clearly in my mind but they would not come out of my mouth in the form of words.  As soon as I started to tell her the first then the other two would disappear.  So I stopped and rethought the three facts through again, and once more, as soon as I began to discuss with my daughter the information disappeared from my mental recall folder.

Well, I have been considering this issue and exactly how my brain may have been compromised somewhat with respect to 'embolistic events' as my neurologist calls them, during my surgeries.  I have decided a couple of important things, and they are;
  • I need to stay active physically to keep good blow flow to my brain.
  • Diet is extremely important.  I must do 'brain' foods!
  • Plenty of rest is an important thing to add to my 'to do list'.
  • Daily mental exercises are a must.
  • Stress must be minimized (stop worrying about Alzheimer)
  • Support group interaction and participation (sharing) is required.
  • Creative solutions to improving short term memory are available for my use, and
  • I need to focus and stay away from multi-tasking.
One creative solution I've come up with solves the 'which way do I turn?' dilemma.   Instead of asking myself 'which way do I turn?', I first tell myself where I am headed.  This peels back the layers of a more complex question, simplifying the decision making process from a 'which way do I turn to go where?' to a statement 'I am going to the ...'.  Once I am focused on my destination it is easier to decipher directions.

And I tried this method all this week and it works!

For me, creative solutions to short term memory issues lie within my ability to adapt!  Now, all I have to do is remember these creative solutions from day to day.

Friday, September 27, 2013

Fighting Hypertension and Supporting Cardiovascular Health Through Haiku

I have been working with various types of stress relief therapies to lower my blood pressure and reduce hypertension, including diet, cardio, medications and also short poetry.  If you notice, this site has a new tab entitled "One Breath Poetry".  Enjoy the nature centered haiku and other short poems, all of which are a reflection of my search for peace and health.

Worth

quiet confidence
realizing self worth comes
from within one's heart 
 ...
Bald Eagle
Haliaeetus leucocephalus
Flagler County, FL, September 2013

Tuesday, September 17, 2013

Renal and Aorta Dissection in Marfan Syndrome. Color Doppler Views.

For those of you interested in color doppler photos of a dissected renal artery and aorta, these are my latest, taken a couple weeks ago.
Color doppler showing blood flow through my aorta #Marfan Syndrome #Dissected Aorta

Color on a doppler echogram represents the direction of blood flow.  As indicated by the legend bar on the upper right, red and the shades of red represent the velocity of blood moving towards the ultrasound transducer.  Oppositely, shades of blue ranging from light to dark reflect the speed of blood flowing away from the doppler unit.

In the photo above the blue represents blood flowing through the true aortic lumen ( the open, original aortic channel) while the redish orange colored section represents blood flowing back towards the ultrasound, or blood caught in the false lumen or channel and flowing back towards the doppler after being caught in the dead-end channel.

The false lumen is like a dead end street.  There is no outlet to the false lumen channel.  Blood flows into the false lumen through the tear in the inner most aortic wall layer called the intimal layer.
My aortic dissection, the torn intimal flap is easily seen crossing the inside diameter of the thoracic aorta
  The photo immediately above shows the ultrasound without doppler effects.  My aorta's false lumen is visible running directly through the middle of the channel.   This 'flap' you see is the section of my aorta torn away from the rest of the vessel.  

Blood flows through an open channel on one side.  The other side of the intimal flap though goes no where.  It is a dead end opening where blood flows in, then back out.

As long as the true lumen is open enough to provide adequate blood flow and the aorta wall does not aneuryze from loss of strength then the flow of blood to the body may still occur.


Another side view of the intimal flap inside my aorta.
Medications and diet can help control blood pressure and pulse rate.  The lower these variables are the more likely the blood flow can be managed.  My blood pressure averages 109/59 and I have a pulse rate of around 45 beats per minute.

The issue with my massive dissection is the fear of aneurysm or total blockage of blood flow.

Because renal artery dissection is one of the health problems I am dealing with, my hypochondria goes into high gear whenever I see blood in my urine.  Is my dissected renal artery aneurysing or bursting?

Doppler view of the flow through my left renal artery

 In fact, last month while visiting my parents in Tallahassee I started having lots of blood in my urine.  My wife, Judy took me to Tallahassee Memorial Emergency Room.  I honestly thought I was having an aneurysing renal artery because of the pain's location and the amount of blood.  Fortunately the blood was caused by a kidney stone. 

But living with constant fear, knowing one's aorta wall is compromised is a constant physical and mental challenge, one experienced by most of those struggling with Marfan Syndrome and other connective tissue disorder issues.

Doppler view of my right renal artery

Friday, September 13, 2013

Cardiac Arrhythmia and Marfan Syndrome, Socks and Gloves

Cold temperatures and I have never been fond of each other.  My heart too detests what the cold does to my circulatory system.
Touching cold objects causes my heart to beat wildly


With the Marfan Syndrome issues affecting my body, including extra height and long limbs, the heart inside has to work extra hard every moment just pump blood those extra long distances.  But when cold affects my fingers and toes my heart sometimes goes crazy trying to figure out how to handle pumping blood through now constricted blood vessels way out there in the fingers and toes.

To put it simply, when my fingers and toes become cold my heart sometimes starts racing or jumping around with crazy atrial fibrillation, also know as cardiac arrhythmia.

My simple solution for avoiding this type of heart fluttering lies in warm socks, a pair of soft comfy gloves and warm weather.

Its that easy for me to avoid certain types of cardiac arrhythmias.  Keep those toes and fingers warm.  Don't let them get cold.

Our body has certain reactions to cold.  One of the first things our body does when our peripheral temperature (temperature of toes, limbs, fingers, arms and ears) drops is to vaso-constrict blood vessels.  There is a good, brief explanation about cold and our body's cardiovascular system on the Livestrong.com website.

An even more comprehensive and excellent brief, visually oriented website explaining the fundamentals of cardiovascular output and variables that can affect both blood pressure and heart rate is published by James Doohan and is a site I highly recommend.

As my curiosity concerning peripheral body temperature and arrhythmia grew, I wondered about my own body.

Judy says my fingers and toes are unusually cold and I agree.  I hate the cold weather or touching anything cold or jumping water.

So I measured my body temperature orally with our medicine thermometer.  The temperature in my mouth was 97.7 F, or 36.5 C.  My fingers and toes were so cool that the digital medicine thermometer could not determine the temperature.

Not to be thwarted I found the industrial infra-red digital thermometer I had in the garage, installed a new 9 volt battery and pointed the laser at my toes.  The readout told me why my feet felt like ice.  Toe temperature was a cool 74.4 F or 23.6 C.  My fingers were not much warmer at 76 F.  The house temperature was a pleasant 79 F while the outside temperature hovered in the mid 80's F.

For comparison I measured my wife's and children's peripheral body temperatures, though the teens thought I was crazy.

Judy's finger and toe temperatures were in the low 90's F.  The two marf teens, with their long limbs were more like me, with lower peripheral body temperatures.

These temperatures are no surprise to me because I know my heart has to pump blood extra long distances, all the while dealing with installed metal parts and foreign aortic components.  The old clicker is also stressed from multiple open heart surgeries, functioning well below normal output.

So when the fingers and toes get cold and the skin vessels constrict as they do naturally to conserve body heat, the heart has a harder job pumping blood.  At this point all the node chemicals and signals start to fire, diastolic pressure jumps and my heart attempts to increase output.

It is kind of like flooring the accelerator pedal in a car with an engine about to throw a rod.  Motor starts shaking, clanging, huffing and puffing and, well you get the picture.

Of course there are many causes of arrhythmia.

But because they are so frightening to me with my beat up heart and aorta, controlling one cause is important.  When  my heart  goes into erratic beat patterns I become concerned the dissected descending aorta will further aneuryze, dilate or even burst.

Fortunately warm comfortable socks, like those made for diabetic patients can moderate lower body peripheral temperatures and reduce the likelihood of signalling for increased cardiovascular output.  Gloves too address the same issue on the hands.

Avoiding cold weather is my big strategy.

But wherever you live, keeping peripheral body temperature fluctuations to a minimum might help you solve some of your afib or arrhythmia problems.  It is worth a try!

Monday, September 9, 2013

Morninga can be Deadly too. Plant Interactions with Medicines.

Seems lessons are always learned the hard way for me.  It is my own fault though.
Moringa oleifera, a very powerful herb that can cause bleeding
I had always read about the many benefits of the plant moringa, especially as a food and source of vitamins, minerals and nutrients.

In fact, moringa provides solutions to far more issue than just health.  The tree can remove pollution from water, grows easily where water is scarce and provides livestock with protein.

As a plant biologist, I've always munched on berries, leaves, nuts and fruit from plants in the garden and plants in the wild.  And I've never had a problem, until the other day after a week of eating a handful of moringa leaves each day.

Immediately after eating the moringa leaves I began feeling full of energy.  There is quite a bit of literature available pointing to how the phytochemicals in moringa can actually improve peripheral circulation.

But within a couple of days I began to urinate blood, lots of blood.

At first I thought I was passing another kidney stone.  It'd only been a couple weeks since I passed three very large stones and they did some serious damage on the way down, creating lots of blood flow with their razor sharp edges.

But the kidney stone damage cleared up within a couple of days.

After a week of urinating blood I began to think the problem at hand was not a kidney stone issue.

Then someone sent me a link to a website where the information suggested moringa could cause internal bleeding.  So I began to research moringa's effects on bleeding and clotting.  There are several quite complicated scientific papers on how moringa's chemical components can interfere with blood clotting.  After reading and rereading the medical terms I realized that the plant is actually a very powerful anti-coagulant and even an abortifacient.

So the morning habit of eating moringa leaves stopped.  And within a day there was no more blood in my urine.

The more I read and researched, the more I realized this plant is not a plant to be taken lightly when ingested for any reason.

Moringa was causing me to hemorrhage.  I was actually bleeding out internally.

Now before I would had scoffed if I had read this.  I would have said something to the effect of 'it was a fluke interaction with other medications', or 'actually something else and not moringa'.

But once you experience first hand the power, good or bad, of this plant, you stand in awe of it.

We have several moringa trees planted around the yard.  Now everytime I walk by one I shiver just a little.  The plant can be a blessing.  The plant can also be a monster.

Lesson learned the hard way.  Herbs, leaves and berries can be good.  They can also be deadly.