tag:blogger.com,1999:blog-3305931569073803870.post2210828632590328912..comments2023-05-06T01:14:05.771-07:00Comments on Aortic Dissection, Heart & Cardiovascular Health with Marfan Syndrome: Aortic Dissection and Aneurysm Symptoms, Living with Marfan SyndromeKevin Songerhttp://www.blogger.com/profile/05494408790726786898noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-3305931569073803870.post-35702458330161678072014-01-11T01:24:07.444-08:002014-01-11T01:24:07.444-08:00Yes I know Marfan Syndrome. I am a 41yr old Africa...Yes I know Marfan Syndrome. I am a 41yr old African American woman who was diagnosed with Marfan Syndromebat the age of 12. I have undergone emergency retinal detachment surgery, mitral valve repair, by the Grace of God I survived an aortic rupture and dissection, descending thoracic aorta graft replacement, and about to have surgery for another TAA. Living with Marfan syndrome has controlled my life all my life, but I refuse to "Give Up or Give In" to this condition..Anonymoushttps://www.blogger.com/profile/01165255499810301808noreply@blogger.comtag:blogger.com,1999:blog-3305931569073803870.post-59227521590194392502013-05-25T15:03:33.216-07:002013-05-25T15:03:33.216-07:00This comment has been removed by the author.Pamhttps://www.blogger.com/profile/12944274004634378117noreply@blogger.comtag:blogger.com,1999:blog-3305931569073803870.post-27146674608438580792013-05-25T09:15:20.293-07:002013-05-25T09:15:20.293-07:00I enjoyed reading your article very much. I was di...I enjoyed reading your article very much. I was diagnosed with Marfan's when I was 20. At age 28, I was at work, and experienced severe chest pain that radiated into my left arm. I had trouble seeing and breathing became difficult. The ER doctor couldn't find anything, and admitted me overnight for observation. Once the on-call cardiologist saw me, he ordered a TEE and immediately saw my dissection of the aortic valve and I was rushed into surgery. I now am a proud owner of a St. Jude valve. I've not had many issues since, and am under constant supervision of my cardiologist. I've been learning so much more about Marfan's in the last couple of years, as there wasn't much known about it when I was diagnosed. Your story mirrors my own, and I'm thankful that you have chosen to speak out and educate. Bless.Anonymoushttps://www.blogger.com/profile/01143052399140295843noreply@blogger.comtag:blogger.com,1999:blog-3305931569073803870.post-3339133130960229252013-05-25T08:13:35.617-07:002013-05-25T08:13:35.617-07:00Very informative and well written! Thank you for s...Very informative and well written! Thank you for sharing your experience and looking forward to reading your future posts :)<br />Brandy B. EvittsAnonymoushttps://www.blogger.com/profile/15652414153461078802noreply@blogger.comtag:blogger.com,1999:blog-3305931569073803870.post-25821434159545756092013-05-25T08:01:25.118-07:002013-05-25T08:01:25.118-07:00Great entry, Kevin. More people need to know about...Great entry, Kevin. More people need to know about the risk factors for aortic disease and the signs of dissection. This includes more doctors. And the folks in the hospital emergency departments need to be aware, not only of the signs, but also how to diagnose quickly. Every hour wasted increases the patient's chance of death. Thanks for sharing your story and your words of wisdom.<br /><br />Eileen Masciale<br />National Marfan FoundationAnonymoushttps://www.blogger.com/profile/01318472089245241817noreply@blogger.com